Research
There are multiple opportunities for families, persons with memory loss/other chronic conditions, and care professionals to participate in research projects that seek to design and evaluate innovative programs.
Summary of Current Projects
*Indicates projects or studies where you can get involved.
†Indicates projects or studies directed by the Families and LTC Projects.
University of Minnesota Caregiver Registry* †
Becoming part of the registry provides the Families and Long-Term Care Projects permission to contact you in the future about any upcoming opportunities to participate in our research as well other basic information. It does not enroll you in any study.
Sign up online:
Family Members
Professionals
Geriatrics Workforce Enhancement Program (GWEP)*
Goals of this collaborative are to educate and train Minnesota’s primary care and geriatrics workforce to care for older adults in integrated models and to partner with community-based organizations across the state to address gaps in the care of older adults. Current initiatives for the Families and Long-Term Care Projects team are state outreach by Dr. Gaugler through presentations in each of the 87 counties in Minnesota and offering resources and referrals to attendees following these presentations.
Immigrant Memory Collaborative †
The goal of this project is to fill the gap in knowledge of dementia prevalence, care needs, and resources among African immigrants in Minnesota. A community-engaged assessment will be conducted, based on our partnership with the African Career, Education, and Resources, Inc. (ACER) and guided by a project advisory board.
The BOLD Public Health Center of Excellence on Dementia Caregiving †
The Public Health Center of Excellence on Dementia Caregiving employs a public health dissemination strategy to achieve the outcomes of increasing access to topic-specific tools and materials and increasing use of topic-specific best practices and proven strategies to support unpaid caregivers of people living with Alzheimer’s disease and related dementias (ADRD). The Center features a robust, engaged network of 17 leading national organizations that represent caregivers of people with ADRD from diverse communities, care contexts/settings, and backgrounds.
This study will be the first of its kind to develop a support program for caregivers of people living with traumatic brain injury as well as Alzheimer’s disease and Alzheimer’s disease related dementia (TBI-AD/ADRD). We call this program the TBI-AD/ADRD Caregiver Support Intervention (TACSI).
Recommendations of the National Alzheimer’s Project Act as well as the National Research Summits on Care, Services, and Supports for Persons with Dementia and their Caregivers have called for continued creation of innovative, scalable, and sustainable community-based supports for older persons with Alzheimer’s disease and Alzheimer’s disease related dementias (AD/ADRD) and their caregivers. The proposed real-world efficacy trial (Stage III of the NIH Stage Model) features an established collaboration between Lutheran Social Service of Minnesota and the University of Minnesota to evaluate a novel adaption of a statewide volunteer program (the “Porchlight Project”) to assist people with AD/ADRD and their family caregivers better manage dementia at home. If successful, the Porchlight Project will offer a potentially efficient, wide-ranging service model for states and communities to implement for volunteers, persons with AD/ADRD, and family caregivers.
Academic Leadership Career Award †
Although considerable investment in dementia care science has occurred, questions continue as to whether the existing evidence base is sufficient to warrant widespread dissemination and implementation of innovations to improve the health and well-being for people living with dementia and their caregivers. The short-term career objective and the focus of this Academic Leadership Career Award is to implement graduate curricula, extensive mentoring, and robust support to enhance pre- and post-doctoral training in the science of dementia care interventions (the Advanced Behavioral Intervention Design in Dementia Care program). The long-term objective that will result from this effort is the creation, leadership, and maintenance of infrastructure at the University of Minnesota that serves as a national resource for advanced methodology in dementia care intervention science.
Black older adults and their caregivers in the United States are unduly burdened by poor health outcomes related to dementia. Black immigrants are poised to make up a significant portion of the Black older adult population and are at risk of poor health outcomes related to dementia, similar to U.S. born Black older adults. The present training and research will directly facilitate the development of interventions that meet the intersecting cultural and social needs of Black immigrants with dementia and their caregivers, which is an important first step towards improving their health.
Home Alone: Developing a Home-Based Intervention for People with Cognitive Impairment Who Live Alone*
This research study will evaluate a support program for older adults with memory impairment who live alone. The seven-session program is designed to help promote well-being and living safely. Coaches will share strategies for lifestyle planning and increasing meaningful activity and social engagement. The program can be delivered at participants’ homes or via telehealth (e.g., secure video conferencing or by phone).
Center for Dementia Respite Innovation
The Alzheimer’s Association, in partnership with USAging and the University of Minnesota (UMN), proposes to advance the field of dementia respite care through a 5-year grants award program entitled the Center for Dementia Respite Innovation. Our overall goal is to enable community-based respite programs to improve and increase the delivery of person-centered dementia care with a focus on innovation, collaboration, outcomes, accessibility, affordability, and sustainability.
The primary objective of the Establishing Mechanisms of Benefit to Reinforce the Alzheimer’s Care Experience AD/ADRD Roybal Center (EMBRACE) is to provide scientific infrastructure to support the testing of mechanisms in tailored home and community dementia care intervention trials across Stages 0-V of the NIH Stage Model. The Aims of EMBRACE are as follows: 1) Leverage the extensive expertise of EMBRACE to attract and support early stage to expert Investigators to test mechanistically driven dementia care interventions across the NIH Stage Model; 2) Advance the science of testing mechanisms of tailored dementia care interventions in home and community settings; and 3) Conduct a robust evaluation of EMBRACE to ensure appropriate progress of supported trials.
Evaluation of the Senator Tomassoni Family Caregiver Support Program in Minnesota*†
With Minnesota’s unique investment in ALS support (the Senator Tomassoni Caregiver Support Program/STCSP-MN), this evaluation aims to evaluate its impact on ALS caregivers who enroll in the program. When completed, it will provide insights into how the STCSP-MN can inform ALS support in other states and communities.
State Alzheimer’s Research Support (StARS) Center
The primary objective of the State Alzheimer’s Research Support (StARS) Center is to assist states and sub-states build partnerships; successfully develop 1-year pilot projects; and contribute toward a centralized data infrastructure to examine and advance the accessibility, affordability, and effectiveness of integrated/coordinated dementia care services across the U.S. The specific aims are as follows: 1) to establish partnerships to identify existing coordinated/integrated dementia care services and available data sources within states; 2) to successfully support 16 dementia care pilot projects; 3) to build a within- and across-state data infrastructure to evaluate dementia care services and policies; and 4) to implement a multifaceted dissemination strategy to promote best practices in the identification, linking, and sharing of dementia care data.
Public Summaries of Completed Projects
A Proactive Health Monitoring Intervention for Dementia Caregivers: The eNeighbor (R18 HS22836, 2014-2020)
Care to Plan: Preliminary Efficacy of a Tailored Resource for Family Members of Persons with Dementia (R21 AG060419, 2019-2022)
Refining a Driving Cessation Management Intervention for Person with Dementia and
their Family Caregivers: CarFreeMe™ (R21 AG067537, 2020-2022)
